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Top > Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

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1. Yahoo! Groups: EBworld
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Mailing list support group for parents, patients, and those interested in learning about disease.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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2. DebRA UK
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Features organization background, information about the disorder, fundraising and research details, and news.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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3. DebRA International
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Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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4. DebRA Australia, Queensland Branch
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Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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5. EB Info World
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Information, mailing list, pictures, and help for new parents.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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6. Cristina's Castle in the Clouds
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Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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7. International EB Forum
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Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0

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8. EB Medical Research Foundation
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A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2007 Hits: 0 Rating: 0.00 Votes: 0

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9. DebRA Canada
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Includes articles, news, and information about this genetic disorder.
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Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2007 Hits: 0 Rating: 0.00 Votes: 0

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10. DebRA of America
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Offers information, news, newsletters, support, and resources.
Category:
Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa

Date Added: Jan 1, 2007 Hits: 0 Rating: 0.00 Votes: 0

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