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Hurler Syndrome
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1. Morquio
Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Talks about what the disorder is and treatments being used in clinical trials.
Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Lists types, places to chat, and websites.
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A star studded fantasy hockey game and auction, allowing participants to play along side some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Founded to provide information and support to affected individuals and their families.
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A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
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Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
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Offers a list of synonyms, a general discussion and further resources.
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A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.
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Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Date Added: Jan 1, 2007 Hits: 0 Rating: 0.00 Votes: 0
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Date Added: Jan 1, 2007 Hits: 0 Rating: 0.00 Votes: 0
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