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Provides a network for those with a severe form of this condition. Includes general information. [Membership fee required to join.]
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Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Email discussion group for those affected by the condition.
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Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Email discussion list for parents to discuss their questions and concerns. [Membership required.]
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Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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Discussion group for families of children with the condition. [Membership required.]
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Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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A patient support group based in West Midlands, UK. Includes details of meetings, alongside general information.
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Date Added: Jan 1, 2006 Hits: 0 Rating: 0.00 Votes: 0
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